Hello everyone, this is kind of difficult for me to announce because I tend to be mum in regards to personal affairs, but I got permission from @JuliusBorisov
to proceed so here goes nothing.
I have a rare genetic disorder known as Erythropoietic Protoporphyria
(EPP for short). This condition prevents me from exposing myself to sunlight. I believe that I have dealt with it fairly well so far in my life, despite the fact that it is very physically challenging, emotionally depressing, mentally draining, and socially isolating.
The reason I am bringing this up is because I started a blog
about living with this condition in order to raise social awareness a few weeks ago. This is the only online community that I have ever become involved with seriously (I'm not even on facebook), and I would like to ask your support. I know that other people here in the community have physical, emotional, mental, and social struggles; some of those people have reached out for support and help as well. I also am aware that some people here in the community are "normal" and just love Baldur's Gate.
I hadn't intended to mention this blog to anyone here when I first started it because I have been in a sort of mental funk lately and kind of withdrew from the community when my computer crashed and I lost my BG files (I still have a windows XP computer and can't download the games because of missing software updates due to a lack microsoft technical support). I was still checking in without posting occasionally, until @Skatan
posted on my wall shortly after I started the blog. I was touched by someone thinking of my mashedtaters, so I got a little more involved again.
I guess I am looking to see what you guys think, to ask for some feedback questions to answer on the blog (although I have a lot already from everyday life), and mainly to ask for you to spread the word about this condition to people you know and to your online communities, hopefully by linking it to your other forms of social media if you feel it is worthy. Due to its rarity there is little to no awareness about this condition, and ignorance brings some of the worst of humanity's traits into the spotlight. I hope to reduce some of that ignorance with understanding, and thus reduce some the harshness of human behavior with empathy.
I have a goal to post on the blog every one to two weeks. Again, the blog is https://eppalive.wordpress.com
. Come check it out and see what you think.
And a special thanks to all the undead, drow, and other evil minions out there who can't be in sunlight. Without them, I wouldn't even have a place in the realms.